For the most part he is the same. Joint pain that migrates. Sometimes its constant and sometimes it only hurts when he uses the joint. The pain moves around his body from day to day and at times he still gets to the point where it's very difficult to walk. SO thankful for Brian who has carried him some. And we have learned that I CAN carry my 13 year old, 102 pound, son room to room and even up and down stairs when necessary! LOL
We had one pain FREE day this weekend! Saturday Chris woke up symptom free :) and spent the entire day with no pain. It was a great relief for him and we are very thankful for the time to breathe.
The doctor has pulled back on Christopher's school schedule and released him now to half days of school only. We will alternate mornings and afternoons every other day so he can hit his different classes. I asked the doctor if there was anything stronger that they could put him on for the pain... I suggested, "What about the medicine they put in his IV? That took the pain away. Can we get some of that?" He just laughed. He said, "Oh no! That's not something you can administer. I'd be shocked if he felt anything on that medicine."
So THAT'S why he felt so good after the ER visit! After we get the blood results tomorrow his Pediatrician will consult with the Rheumatologist and hopefully get his appointment (January 20) moved up or some ideas to relieve the inflammation.
More updates will follow when we have more information.
I don't remember praying for patience recently.................



2 comments:
Sed rate came back... unfortunately it's gone up to 52 which means there is more inflammation in his little body now. Not the answer we were hoping for.
:(
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